Sunday, April 26, 2009

Marg's Story

"Hi Kim, my name is Marg and I have been diagnosed with Lupus since August 2007. Before January 07 I knew very little of Lupus. Now I know too much I think. I am currently on sick leave and it will be two years in July. Every morning I have to decide what tasks are "must dos" as I know I will not have the strength or ability to do everything I should be doing. Some days Lupus takes away my fine and gross motor skills and leaves me exhausted. Other days my body feels like I have been hit by a bus over and over again. My family does their best to understand but our life is not the same. I do not play sports anymore with my old teams or my kids. We used to ski, golf and play soccer, just to name a few. Now I sit frustrated on the sidelines...that is if I am well enough to attend. Come July I will have to fight in order to be granted LTD. It is not that I don't want to work , I would like nothing better. Unfortunately I can't as each day brings something else and not alwayssomething good. Lupus affects families, friends and everyone around us. It has brought pain and frustration to not only me but also my family. This is a short version of my story, I hope it helps.
Marg Hart-Nadon"

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